Governance

Why patient advocates have two permanent council seats.

Patient and family voice cannot be 'consulted'. It has to be in the room when the spec changes. Here is how we structured that.

When we drafted RFC-0023, the original proposal had a single patient-advocate seat on the council. The advocates who were already informally involved told us — with very little patience — that one seat is worse than none.

Why two, not one

Because one advocate ends up as the token voice. Two advocates can disagree with each other in public, which is the entire point. The seats are permanent, which means they do not rotate; the people in them do, but the seats stay.

What the seats are for

Plain-language reviews of every module spec before release. Veto rights at the equity release gate. Final say on patient-facing surfaces — what they look like, what they communicate, what they don't communicate.

The patient-facing surface is not a translation of the clinical surface. It is a different artefact, designed differently, by different people, for a different reader.

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